IDDO SCH-STH Individual Patient Data (IPD) platform

01 Oct 2019

Global scientific collaboration launched

A new, global scientific collaboration was launched earlier this year by the Infectious Diseases Data Observatory, IDDO, and TDR the Special Programme for Research and Training in Tropical Diseases. IDDO is developing a data sharing and reuse platform aiming to improve treatment outcomes for the millions of people who suffer from schistosomiasis and soil-transmitted helminthiases (STHs).

 

Until now, it has not always been possible to compare existing studies effectively due to differing designs, methods and reporting. This new collaboration will address this gap in neglected tropical data sharing and research by curating and standardising individual-patient data, IPD, to facilitate complex meta-analyses led by the schistosomiasis and STH research communities. These analyses will generate new evidence on how individuals and populations are responding to treatment and drive policy on how best to optimise and safeguard the efficacy of the medicines that are essential for control and elimination efforts.

The platform is now open for contributions from researchers to support the initiative, click here to get involved and for more information please email schistosth [at] iddo [dot] org (mailto:)

 

 

 

About IDDO Launched in 2016, The Infectious Diseases Data Observatory (IDDO) is a scientifically independent, multi-disciplinary coalition of the global infectious disease community. It provides the methods, governance and infrastructure to translate data into evidence that improves outcomes for patients worldwide. IDDO builds on and incorporates the pioneering work of the WorldWide Antimalarial Resistance Network (WWARN), a unique, decade-long collaborative data-sharing framework that proved it was possible to produce policy-changing scientific evidence from historical data, benefitting the health of millions.  

 

IDDO Vision: A healthy future for the world’s most at risk populations, realised through global scientific partnerships. IDDO Mission: IDDO accelerates better treatment and control of poverty-related infectious diseases by generating research evidence through data re-use, putting the communities most affected at the centre of its global collaborations. IDDO Principles: IDDO follows the FREE FAIRER principles of ensuring that research data are Findable, Rapidly available, Ethical, Equitable, Forever, Accessible, Interoperable, Reliable, Economically viable, and Reusable.  
Research Monitoring and Evaluation